in the PICU and in the neuro team. The new neuro guy came in and said something we've never heard--"I think I know what's wrong with Dexter." Aaron and I were kind of blown away and, I'll admit it, somewhat dubious. He said he needed a 24 hour EEG to confirm it. He told us the name of the syndrome he suspected and sounded quite confident about it. Dexter's all hooked up to the EEG right now (doesn't he look COOL?), so tomorrow we'll see if the EEG confirms Dr. Confidence's suspicions.
The new PICU Doc had a different take on Dexter's ventilator dependence than the last one. He said that the pressure support trials aren't as accurate about predicting extubation success or failure for little babies. If a 5-year-old performed the way Dexter did on the trials, he would be very concerned about the outcome of extubation, but for a guy Dexter's size, those same results are less concerning. He concluded rather noncommittally, "I'm not completely optimistic about extubation, but I'm not completely pessimistic, either." Which makes him somewhat more optimistic than yesterday's attending doctor.
Plus, Dexter had a pretty good day today. He was awake for most of the day without being agitated. He was only having 3-5 seizures per hour instead of 12-15 like he was on Saturday. I got to hold him for several hours, and he gazed in my direction and got all nice and rosy pink as he snuggled in my arms. He looked better than he has in a couple days. It was awesome to see the fulfillment of yesterday's blessing that Dexter's body would be at ease and gain strength and that he would be able to feel his mom and dad's love. I'm trying to just enjoy every day we have with Dexter, whether they be few or many.