Tuesday, January 27, 2009
Day 24--The Care Conference
After talking and praying together last night, Aaron and I went into the Care Conference feeling like a G-tube would be best for Dexter. Everyone there (attending doctor, fellow, resident, primary care nurse, charge nurse, speech pathologist, speech pathologist student, and developmental therapist) agreed with that assessment, but they were so great about answering our questions and leaving the choice up to us. I felt like we all communicated really well and got on the same page about what to do next. It was definitely a positive experience. Before the G-tube surgery, he needs an upper GI, which is apparently a lot like a swallow study but it involves what happens with a full stomach. Then he'll be scheduled for surgery, recover, and come home. Sounds simple doesn't it? We are so excited to have him home, even though it's going to be a lot to juggle with pumping milk for him, trying to teach him to feed orally, and giving him G-tube feedings. Not to mention coordinating in-home physical therapist and occupational therapist visits and daily PT exercises for Dexter. Oh yeah, and maybe I should take care of my other kids somewhere in there. Hmmm. It may take me a bit to adjust, but I'm sure we'll get it all figured out and then life will feel normal again.