Tuesday, January 27, 2009

Day 24--The Care Conference

After talking and praying together last night, Aaron and I went into the Care Conference feeling like a G-tube would be best for Dexter. Everyone there (attending doctor, fellow, resident, primary care nurse, charge nurse, speech pathologist, speech pathologist student, and developmental therapist) agreed with that assessment, but they were so great about answering our questions and leaving the choice up to us. I felt like we all communicated really well and got on the same page about what to do next. It was definitely a positive experience. Before the G-tube surgery, he needs an upper GI, which is apparently a lot like a swallow study but it involves what happens with a full stomach. Then he'll be scheduled for surgery, recover, and come home. Sounds simple doesn't it? We are so excited to have him home, even though it's going to be a lot to juggle with pumping milk for him, trying to teach him to feed orally, and giving him G-tube feedings. Not to mention coordinating in-home physical therapist and occupational therapist visits and daily PT exercises for Dexter. Oh yeah, and maybe I should take care of my other kids somewhere in there. Hmmm. It may take me a bit to adjust, but I'm sure we'll get it all figured out and then life will feel normal again.

3 comments:

Stephenson family said...

Yea!! You get to take him home soon!! I am so happy for you. Let me know when the surgery is going to be please. I hope someone can come to help you for a while when he gets to come home, sounds like you are going to be very busy.

thepersonaltouch said...

I'm so glad that all the prayers now have everyone "on the same page" with Dexter's care. I'm sure excited for you that he'll be home soon.

Sorry I haven't been able to get by the hospital to see you. It's been a rough couple of weeks.

Love, Roxane

crazycrains said...

I bet you feel like you need a clone of yourself! Wish we were there to help! We love you!